I started a blog so that everyone can keep up with this mysterious medical condition going on with Kaylee. Since everyone has so many questions I figured this was the easiest way.
Let's start from the beginning. About 6 weeks ago Kaylee got sick with a horrible cough, fever, earache and vomiting. The doctor put her on anti-biotics because she saw fluid in her ear and diagnosed her with an ear infection. However, when we showed her Kaylee's swollen tongue she got stumped. She called in another doctor to take a look at it and they basically told us just to watch it and let us know if it changes. Well, it didn't change, Kaylee was still throwing up, her ears still hurt so I took her back in. They referred us to an ENT who in turn referred us to ANOTHER ENT because he had no idea what was going on with her tongue. We finally met Dr. Werle. He immediately set us up to have an MRI done at Medical City Children's hosptial last Friday. Kaylee did great! Six hours later we were home from the hospital and then the waiting game begun.
Today was the day we were suppose to get some answers. Dr. Werle finally called. He didn't have much news, but he had some. Kaylee definitely has a tumor on her tongue. However, the radiologist has never seen anything like it. Dr. Werle was on his way up to Medical City to read the MRI scans himself and to also have another radiologist read the scans for another opinion. In addition to all of that, he is having his peers take a look at the scans and give their opinion.
Leave it to Kaylee to become a case study. Right now, I am just very thankful that her doctor is taking great care of her by getting several opinions and being very thorough. Surgery is very likely at this point, we just don't know what the surgery will be for.
Keep in mind that Kaylee is fine and is acting like her normal happy two year old self. She's still running around, playing and being silly. She is in no pain and is no longer vomiting. This makes this situation a lot easier to see her acting as a normal kid :)
Thank you for all of the prayers, emails, text messages and phone calls. They mean so much to us. We will keep you all updated throughout all of this.
poor baby. I can't imagine the worry you are going thru. I hope all works out. stay strong..maybe her case study will help out other tots her age...maybe they would name it after her! She'll be famous! :) I'm glad you started a blog. looks cute.
ReplyDeleteWOW! Is she having trouble talking or anything? I hope that they figure out what exactly it is and take care of it quickly. I will definitely keep all of you in my thoughts and prayers. If there is anything I can do, please let me know.
ReplyDeleteAs you already know, we love you and are sending prayers your way each and every day. I love the new picture of Kaylee and I am thankful that she is not in any pain. Stay strong and keep that faith! You have support and love coming from so many! God bless you all!
ReplyDeleteI am so glad she is still her happy fun self. Kaylee is such a strong girl (I think she gets that from her Momma!) and I know she is going to be just fine. Please let me know if you need anything!
ReplyDeleteI too am glad that she is still herself! :) I am still praying for her and cannot imagine what you guys are going through. Big {{{HUGS}}} and I am here if you need me. :)
ReplyDeleteLana, I will keep you guys in my prayers! Glad she is feeling better!
ReplyDeleteIf you guys need anything just let Chris and I know.
ReplyDeleteI'm a friend of your friend Rhonda, she has shared your prayer request on Facebook as well as this link with her "prayer warriors"..just so you know that those of us who don't know you personally are praying for your baby and your family...The Savell Family in Tennessee
ReplyDeleteI am also a friend of Rhonda's who shared your prayer request with me. So thankful that Kaylee is at least feeling good. Even though the doctors are not sure exactly what it is, our God knows. Praying for protection and healing for this precious little girl.....Teresa Dixon
ReplyDeleteSo sorry, Lana. Will be praying for your family during this uncertain time.
ReplyDeletePatty Busby
Thank you everyone! I am new to this blog thing so I am just now reading all of your wonderful comments. I just posted an update on Kaylee's surgery. Keep the prayers coming. They are appreciated more than you will ever know!
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